Attitude · Diet Compliance · Inspiration/motivation · Living with PKU · Moms

Emotional Work and PKU

“The diet is difficult to follow.” “I know I need to drink my formula, but it’s hard.” “I’m so worried my child will feel that he’s different.” “I don’t like my doctor.” “I have really slacked on my diet lately and I feel super guilty.” “PKU foods are so expensive!” “I hate PKU. I wish… Continue reading Emotional Work and PKU

Attitude · Inspiration/motivation · Living with PKU

PKU – People Are Actually Really Great About It

I missed PKU Awareness Day on December 3, but today I want to share a different side of the PKU story. This week I made rice crispy treats because,  well, my daughter saw the holiday rice crispie box in the store and the pictures of rice crispy treats looked good. I’m also not a very… Continue reading PKU – People Are Actually Really Great About It

Inspiration/motivation · Living with PKU · Moms · Recipes · Uncategorized

Chinese Dumplings – a Family Experience

It’s not what’s on your table, but who is around it that counts. Yesterday I attempted to make home-made boiled dumplings for the first time. This is something my family did and still does every year at New Year’s Eve, and it has become my all-time favorite holiday tradition. As a young adult, my Dad… Continue reading Chinese Dumplings – a Family Experience

Food · Kids · Living with PKU · Shopping

8 Low-Protein Snacks at the Grocery Store

Last week I posted about my grocery store tour with Biomarin clinical coordinator, Tiffany. Today I’m sharing the snack foods I saw while there. All of these were found in my local Kroger store. Basic crackers. That’s 0.3 g of protein. Cookies Apple butter for biscuits, pancakes or toast. We use this a lot in… Continue reading 8 Low-Protein Snacks at the Grocery Store