In my last post I shared that I have begun Kuvan treatment. Because some of my audience are people that don’t have PKU and are not familiar with Kuvan, I thought I’d take a minute to explain what Kuvan is and how it works. First, a refresher on PKU I general: in PKU patients, the… Continue reading Kuvan – the what and how
Between my husband’s graduation, a cross-country move and a new PKU treatment, the last few months have been exciting and eventful for me! We have recently moved from our four-year home in Tempe, Arizona to Columbus, Ohio, and it has been quite a journey! In April my husband passed his dissertation defense with flying colors.… Continue reading Huge changes + Kuvan news
The other day a good friend texted me, who now lives in a different state. She related to me an experience she had while at the zoo with her little daughter. She had offered to share a snack with a child nearby, when the mom said her daughter couldn’t eat it, because it had too… Continue reading A Reason for my Hope
Today at the grocery store, bell peppers were on sale, so I decided we would have fajitas tonight. I also had ingredients for pico de gallo, so I decided to give that a try. For the protein meal, I did a really easy salsa verde chicken in the crock pot. Fajitas are really simple. I… Continue reading Fajitas con Pico de Gallo
Despite it being September, in Arizona it is still hot as ever. While I’m glad it’s no longer 110+ every day, I look forward to the days where it will dip below 90 more frequently. The other day I went to the store when I was very hot and thirsty and came out with sorbet… Continue reading A Summer Treat
The conference is over. I’m in my hotel room after the last day of maternal PKU mentor training. My baby is asleep. It is a beautiful night in the beautiful city of Indianapolis. My heart is just filled with gratitude for being able to have this experience. First of all, a huge shout out goes… Continue reading NPKUA Conference
How is everyone’s summer going? Down here in Arizona we are surviving the three digit temperatures by being creative with indoor play (did you know couch cushions can entertain two little girls for hours?) and by going out of town a lot. 🙂 So far we’ve had a family reunion in southern Utah, a California… Continue reading To Indianapolis!