Kevin Alexander just posted on facebook about travelling with PKU and I realized that I have some good stories that need to be shared! Getting through airport security with formula can be interesting. I bring my formula for the day in a little cooler. Now, as we all know, we are not allowed to bring… Continue reading Travelling Stories
Happy Martin Luther King Day! What better meal for this cold January American holiday than grilled cheese sandwiches? Well…grilled cheese is what my husband will be eating, but not me! Here is a recipe my creative father invented for me to eat when the family was having grilled cheese. 1-2 slices of low-protein bread or… Continue reading Grilled Sandwich
Stress is a normal part of all of our lives. Sometimes it helps us get things done. But when it happens too often or for too long, it can have harmful effects on our bodies. It can give you head aches or other pain and even weaken your immune system. Being overly stressed may make it… Continue reading Stress Management
One big thing I am sure we all do is meal adaptations. Especially in a family, this becomes extremely useful. Growing up, my mom always made two meals — one for the “protein-eaters,” as we called them (my parents and two younger sisters), and one for the PKU child. My mom was very creative in… Continue reading Meal Tip and ‘Goop’ Recipe
“Experience is not what happens to a man. It is what a man does with what happens to him.”
~Aldous Leonard Huxley, Texts and Pretexts, 1932
Do you make yourself a victim of what happens to you? It can be very tempting, but it won’t get you anywhere. The most empowering thing to do with adverse circumstances is to choose to do something positive with the things that are in your control.
This is how I see PKU. There is nothing anyone of us can do about having PKU. But we can choose how we deal with it. We can commit to the diet in order to have a healthy and happy life. We can enjoy the foods we CAN eat. We can be creative with our cooking so we don’t get too bored of repetitive meals. We can try to support and share with others who have the same condition.
What do you do to make PKU a positive experience?
I got this off of The National PKU Alliance’s website. It’s a list of foods found at Trader Joe’s that are low in protein. I personally love sweet potato fries! But you can get those at any grocery store (and they’d probably be cheaper there). Something else I love is Thai Kitchen instant rice noodle… Continue reading PKU friendly foods