Attitude · Diet Compliance · Inspiration/motivation · Living with PKU · Moms · Promotion/Awareness · Science

NPKUA Conference

The conference is over. I’m in my hotel room after the last day of maternal PKU mentor training. My baby is asleep. It is a beautiful night in the beautiful city of Indianapolis. My heart is just filled with gratitude for being able to have this experience.  First of all, a huge shout out goes… Continue reading NPKUA Conference

Attitude · Inspiration/motivation · Living with PKU · Moms

It is OK to be Different!

Dealing with the PKU diet as a family note: this post was originally written¬†for and posted on the Metabolic Disease Foundation’s blog about PKU One of the biggest concerns I have heard when talking to parents of PKU children, is how their child will deal with being different. Today I will share my perspective, writing… Continue reading It is OK to be Different!

Attitude · Diet Compliance · Formula · Inspiration/motivation · Kids · Living with PKU · Moms

The Formula Mindset

Is my formula medicine or food? I recently got an email asking for help with motivation to drink the formula, when you don’t “feel the effects.” This caused me to stop and think — how should we be thinking about our formula? Is it like a medicine that makes you feel better like ibuprofin when… Continue reading The Formula Mindset

Attitude · Inspiration/motivation · Living with PKU · Promotion/Awareness

PKU and Taking Control of Your Life

TRU: The Real You — Taking Control: What I’ve Learned From Having PKU

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One of my best friends has this awesome blog about TRU Beauty to help women and girls come to know their true value and potential. This week she featured an article I wrote about what I’ve learned from having PKU. Check it out and ‘Like’ their facebook page!

Attitude · Diet Compliance · Formula · Inspiration/motivation · Living with PKU · Moms

Why Cheating Is No Favor

You can always add more protein to your child’s diet, but cutting back is extremely difficult. I have never eaten a hamburger. Ever. In my life. It’s true! And do you know what? My life is still perfectly alright. Having to follow such a strict diet might seem unimaginable to a parent of a child… Continue reading Why Cheating Is No Favor

Attitude · Blood Levels · Diet Compliance · Inspiration/motivation · Living with PKU · Promotion/Awareness · Recipes

Tiffany’s Story

Going off diet, getting back on, and why she’s staying there For my first guest post, I am happy to share the inspiring story of Tiffany Partridge. Thank you so much Tiffany for being willing to share! Here is her story in her own words: As far back as I can remember I knew I… Continue reading Tiffany’s Story