“The diet is difficult to follow.” “I know I need to drink my formula, but it’s hard.” “I’m so worried my child will feel that he’s different.” “I don’t like my doctor.” “I have really slacked on my diet lately and I feel super guilty.” “PKU foods are so expensive!” “I hate PKU. I wish… Continue reading Emotional Work and PKU
I would like to formally announce that I am pregnant with baby number 3! I am due June 25. Right now I’m a little over 27 weeks along. Despite our gut instincts to the contrary, we are having yet another girl! I am feeling pretty well. First trimester was not fun. Nausea, winter, and my… Continue reading A Mother Again
I missed PKU Awareness Day on December 3, but today I want to share a different side of the PKU story. This week I made rice crispy treats because, well, my daughter saw the holiday rice crispie box in the store and the pictures of rice crispy treats looked good. I’m also not a very… Continue reading PKU – People Are Actually Really Great About It
It’s not what’s on your table, but who is around it that counts. Yesterday I attempted to make home-made boiled dumplings for the first time. This is something my family did and still does every year at New Year’s Eve, and it has become my all-time favorite holiday tradition. As a young adult, my Dad… Continue reading Chinese Dumplings – a Family Experience
The other day a good friend texted me, who now lives in a different state. She related to me an experience she had while at the zoo with her little daughter. She had offered to share a snack with a child nearby, when the mom said her daughter couldn’t eat it, because it had too… Continue reading A Reason for my Hope
The conference is over. I’m in my hotel room after the last day of maternal PKU mentor training. My baby is asleep. It is a beautiful night in the beautiful city of Indianapolis. My heart is just filled with gratitude for being able to have this experience. First of all, a huge shout out goes… Continue reading NPKUA Conference
How is everyone’s summer going? Down here in Arizona we are surviving the three digit temperatures by being creative with indoor play (did you know couch cushions can entertain two little girls for hours?) and by going out of town a lot. 🙂 So far we’ve had a family reunion in southern Utah, a California… Continue reading To Indianapolis!