Attitude · Diet Compliance · Inspiration/motivation · Living with PKU · Moms · Promotion/Awareness · Science

NPKUA Conference

The conference is over. I’m in my hotel room after the last day of maternal PKU mentor training. My baby is asleep. It is a beautiful night in the beautiful city of Indianapolis. My heart is just filled with gratitude for being able to have this experience.  First of all, a huge shout out goes… Continue reading NPKUA Conference

Inspiration/motivation · Living with PKU · Moms · Promotion/Awareness · Science

To Indianapolis!

How is everyone’s summer going? Down here in Arizona we are surviving the three digit temperatures by being  creative with indoor play (did you know couch cushions can entertain two little girls for hours?) and by going out of town a lot. 🙂 So far we’ve had a family reunion in southern Utah, a California… Continue reading To Indianapolis!

Food · Inspiration/motivation · Living with PKU

PKU and Nutrition – challenges and goals

I recently took a nutrition class through Thrive to Five, a local community organization to support parents of young children. It was awesome. I’ve always enjoyed learning about nutrition, plus, as a stay-at-home mom, it felt SO GOOD to sit in a classroom (with my 2 year old in the complimentary childcare next door) and be a… Continue reading PKU and Nutrition – challenges and goals

Attitude · Inspiration/motivation · Living with PKU · Moms

It is OK to be Different!

Dealing with the PKU diet as a family note: this post was originally written for and posted on the Metabolic Disease Foundation’s blog about PKU One of the biggest concerns I have heard when talking to parents of PKU children, is how their child will deal with being different. Today I will share my perspective, writing… Continue reading It is OK to be Different!