Last week my sister Marianne and her cute little family came to visit for my daughter Elena’s fourth birthday. It was so nice to see them! I have mostly lived away from family during my marriage, and now my sister is a 3 hour drive away. Yay! Many more get-togethers to come. One night for… Continue reading Summer Kababs
In my last post I shared that I have begun Kuvan treatment. Because some of my audience are people that don’t have PKU and are not familiar with Kuvan, I thought I’d take a minute to explain what Kuvan is and how it works. First, a refresher on PKU I general: in PKU patients, the… Continue reading Kuvan – the what and how
Between my husband’s graduation, a cross-country move and a new PKU treatment, the last few months have been exciting and eventful for me! We have recently moved from our four-year home in Tempe, Arizona to Columbus, Ohio, and it has been quite a journey! In April my husband passed his dissertation defense with flying colors.… Continue reading Huge changes + Kuvan news
The conference is over. I’m in my hotel room after the last day of maternal PKU mentor training. My baby is asleep. It is a beautiful night in the beautiful city of Indianapolis. My heart is just filled with gratitude for being able to have this experience. First of all, a huge shout out goes… Continue reading NPKUA Conference
How is everyone’s summer going? Down here in Arizona we are surviving the three digit temperatures by being creative with indoor play (did you know couch cushions can entertain two little girls for hours?) and by going out of town a lot. 🙂 So far we’ve had a family reunion in southern Utah, a California… Continue reading To Indianapolis!
Recently my husband, the main dish-doer in our house, declared that this milk pitcher needed to go (and you know when I say ‘milk’ I mean formula, right? Anyone else call it that?). The handle was just too awkward to keep clean (who’s idea was that anyway? Yuck). Bye bye. Well my favorite milk pitcher… Continue reading New Milk Carafe
I recently took a nutrition class through Thrive to Five, a local community organization to support parents of young children. It was awesome. I’ve always enjoyed learning about nutrition, plus, as a stay-at-home mom, it felt SO GOOD to sit in a classroom (with my 2 year old in the complimentary childcare next door) and be a… Continue reading PKU and Nutrition – challenges and goals