“The diet is difficult to follow.” “I know I need to drink my formula, but it’s hard.” “I’m so worried my child will feel that he’s different.” “I don’t like my doctor.” “I have really slacked on my diet lately and I feel super guilty.” “PKU foods are so expensive!” “I hate PKU. I wish… Continue reading Emotional Work and PKU
It’s not what’s on your table, but who is around it that counts. Yesterday I attempted to make home-made boiled dumplings for the first time. This is something my family did and still does every year at New Year’s Eve, and it has become my all-time favorite holiday tradition. As a young adult, my Dad… Continue reading Chinese Dumplings – a Family Experience
The conference is over. I’m in my hotel room after the last day of maternal PKU mentor training. My baby is asleep. It is a beautiful night in the beautiful city of Indianapolis. My heart is just filled with gratitude for being able to have this experience. First of all, a huge shout out goes… Continue reading NPKUA Conference
How is everyone’s summer going? Down here in Arizona we are surviving the three digit temperatures by being creative with indoor play (did you know couch cushions can entertain two little girls for hours?) and by going out of town a lot. 🙂 So far we’ve had a family reunion in southern Utah, a California… Continue reading To Indianapolis!
Recently my husband, the main dish-doer in our house, declared that this milk pitcher needed to go (and you know when I say ‘milk’ I mean formula, right? Anyone else call it that?). The handle was just too awkward to keep clean (who’s idea was that anyway? Yuck). Bye bye. Well my favorite milk pitcher… Continue reading New Milk Carafe
Great news! I have had many parents contact me wanting to meet other PKU families and not knowing where to start. Growing up I went to a clinic at the University of Washington that had monthly meetings with all the parents and PKU patients from a certain age range. We had our blood tests and… Continue reading Kinsights – PKU Parent Support
Hello! How has everyone been? I know it has been quite a while since I’ve posted anything. Well, I have been just a bit busy with these little munchkins. I am loving being a mom of two. It is just enough challenge for me right now to keep me learning and praying lots. Some days are… Continue reading My Family