Attitude · Diet Compliance · Inspiration/motivation · Living with PKU · Moms · Promotion/Awareness · Science

NPKUA Conference

The conference is over. I’m in my hotel room after the last day of maternal PKU mentor training. My baby is asleep. It is a beautiful night in the beautiful city of Indianapolis. My heart is just filled with gratitude for being able to have this experience.  First of all, a huge shout out goes… Continue reading NPKUA Conference

Inspiration/motivation · Living with PKU · Moms · Promotion/Awareness · Science

To Indianapolis!

How is everyone’s summer going? Down here in Arizona we are surviving the three digit temperatures by being  creative with indoor play (did you know couch cushions can entertain two little girls for hours?) and by going out of town a lot. 🙂 So far we’ve had a family reunion in southern Utah, a California… Continue reading To Indianapolis!

Diet Compliance · Food · Formula · Inspiration/motivation · Living with PKU · Moms · Promotion/Awareness

Explaining the PKU Diet

Growing up following the PKU diet, you get a lot of questions. You drink a special formula, say ‘no’ to many foods, and often eat different food – and people notice. It can be hard to know how to explain PKU, because it is so rare and it’s unlike any food issue most people have… Continue reading Explaining the PKU Diet

Food · Promotion/Awareness

Creative Cooking for PKU Families Event

This Saturday I went to an awesome event hosted by my PKU clinic at Phoenix Children’s Hospital, sponsored by BioMarin Pharmeceutical Inc. It was held in a cooking studio called AndyFood. There were a couple presentations followed by a cooking workshop by Chef Andy Broder. I learned some interesting things, got inspired about cooking and met… Continue reading Creative Cooking for PKU Families Event