Attitude · Inspiration/motivation · Living with PKU · Moms

It is OK to be Different!

Dealing with the PKU diet as a family note: this post was originally written for and posted on the Metabolic Disease Foundation’s blog about PKU One of the biggest concerns I have heard when talking to parents of PKU children, is how their child will deal with being different. Today I will share my perspective, writing… Continue reading It is OK to be Different!

Diet Compliance · Inspiration/motivation · Living with PKU · Moms

Interview with Alissa Doerner: A Classic PKU Story

Alissa is a special education teacher, a 5k runner, and a world traveler. She also has classic PKU. Here is her story. What was it like growing up with Classic PKU? Growing up with Classic PKU was just like anyone else growing up, I just ate differently. Classic PKU, my special diet, my formula, and… Continue reading Interview with Alissa Doerner: A Classic PKU Story

Attitude · Diet Compliance · Formula · Inspiration/motivation · Living with PKU · Moms

Why Cheating Is No Favor

You can always add more protein to your child’s diet, but cutting back is extremely difficult. I have never eaten a hamburger. Ever. In my life. It’s true! And do you know what? My life is still perfectly alright. Having to follow such a strict diet might seem unimaginable to a parent of a child… Continue reading Why Cheating Is No Favor

Attitude · Blood Levels · Diet Compliance · Inspiration/motivation · Living with PKU · Promotion/Awareness · Recipes

Tiffany’s Story

Going off diet, getting back on, and why she’s staying there For my first guest post, I am happy to share the inspiring story of Tiffany Partridge. Thank you so much Tiffany for being willing to share! Here is her story in her own words: As far back as I can remember I knew I… Continue reading Tiffany’s Story