Last week my sister Marianne and her cute little family came to visit for my daughter Elena’s fourth birthday. It was so nice to see them! I have mostly lived away from family during my marriage, and now my sister is a 3 hour drive away. Yay! Many more get-togethers to come. One night for… Continue reading Summer Kababs
Between my husband’s graduation, a cross-country move and a new PKU treatment, the last few months have been exciting and eventful for me! We have recently moved from our four-year home in Tempe, Arizona to Columbus, Ohio, and it has been quite a journey! In April my husband passed his dissertation defense with flying colors.… Continue reading Huge changes + Kuvan news
Hello! How has everyone been? I know it has been quite a while since I’ve posted anything. Well, I have been just a bit busy with these little munchkins. I am loving being a mom of two. It is just enough challenge for me right now to keep me learning and praying lots. Some days are… Continue reading My Family
Dealing with the PKU diet as a family note: this post was originally written for and posted on the Metabolic Disease Foundation’s blog about PKU One of the biggest concerns I have heard when talking to parents of PKU children, is how their child will deal with being different. Today I will share my perspective, writing… Continue reading It is OK to be Different!
I announced on the facebook page a while back that we are expecting baby # 2 this August! Just thought I’d post some pictures and an update here on the blog. We are excited to be having another GIRL! Good thing my husband loves girls. 🙂 And we hope to have a boy or two… Continue reading 2nd Pregnancy Going Smoothly
Alissa is a special education teacher, a 5k runner, and a world traveler. She also has classic PKU. Here is her story. What was it like growing up with Classic PKU? Growing up with Classic PKU was just like anyone else growing up, I just ate differently. Classic PKU, my special diet, my formula, and… Continue reading Interview with Alissa Doerner: A Classic PKU Story
I was interviewed recently about life with PKU for this genetic testing website. They published it for National PKU Awareness day. Me You and PKU – Recombine