Hello! How has everyone been? I know it has been quite a while since I’ve posted anything. Well, I have been just a bit busy with these little munchkins. I am loving being a mom of two. It is just enough challenge for me right now to keep me learning and praying lots. Some days are… Continue reading My Family
Dealing with the PKU diet as a family note: this post was originally written for and posted on the Metabolic Disease Foundation’s blog about PKU One of the biggest concerns I have heard when talking to parents of PKU children, is how their child will deal with being different. Today I will share my perspective, writing… Continue reading It is OK to be Different!
I announced on the facebook page a while back that we are expecting baby # 2 this August! Just thought I’d post some pictures and an update here on the blog. We are excited to be having another GIRL! Good thing my husband loves girls. 🙂 And we hope to have a boy or two… Continue reading 2nd Pregnancy Going Smoothly
Alissa is a special education teacher, a 5k runner, and a world traveler. She also has classic PKU. Here is her story. What was it like growing up with Classic PKU? Growing up with Classic PKU was just like anyone else growing up, I just ate differently. Classic PKU, my special diet, my formula, and… Continue reading Interview with Alissa Doerner: A Classic PKU Story
I was interviewed recently about life with PKU for this genetic testing website. They published it for National PKU Awareness day. Me You and PKU – Recombine
You may be thinking that was a typo. But no, I meant, “protein cooking,” not, “Low-protein cooking.” Because, for many of us, we are not living our PKU life in isolation, we are a part of a family! We often end up cooking protein and low-protein food side by side. Growing up I am sure… Continue reading Protein Cooking
This Saturday I went to an awesome event hosted by my PKU clinic at Phoenix Children’s Hospital, sponsored by BioMarin Pharmeceutical Inc. It was held in a cooking studio called AndyFood. There were a couple presentations followed by a cooking workshop by Chef Andy Broder. I learned some interesting things, got inspired about cooking and met… Continue reading Creative Cooking for PKU Families Event