I missed PKU Awareness Day on December 3, but today I want to share a different side of the PKU story. This week I made rice crispy treats because, well, my daughter saw the holiday rice crispie box in the store and the pictures of rice crispy treats looked good. I’m also not a very… Continue reading PKU – People Are Actually Really Great About It
The other day a good friend texted me, who now lives in a different state. She related to me an experience she had while at the zoo with her little daughter. She had offered to share a snack with a child nearby, when the mom said her daughter couldn’t eat it, because it had too… Continue reading A Reason for my Hope
Dealing with the PKU diet as a family note: this post was originally written for and posted on the Metabolic Disease Foundation’s blog about PKU One of the biggest concerns I have heard when talking to parents of PKU children, is how their child will deal with being different. Today I will share my perspective, writing… Continue reading It is OK to be Different!