In my last post I shared that I have begun Kuvan treatment. Because some of my audience are people that don’t have PKU and are not familiar with Kuvan, I thought I’d take a minute to explain what Kuvan is and how it works. First, a refresher on PKU I general: in PKU patients, the… Continue reading Kuvan – the what and how
Between my husband’s graduation, a cross-country move and a new PKU treatment, the last few months have been exciting and eventful for me! We have recently moved from our four-year home in Tempe, Arizona to Columbus, Ohio, and it has been quite a journey! In April my husband passed his dissertation defense with flying colors.… Continue reading Huge changes + Kuvan news
Recently my husband, the main dish-doer in our house, declared that this milk pitcher needed to go (and you know when I say ‘milk’ I mean formula, right? Anyone else call it that?). The handle was just too awkward to keep clean (who’s idea was that anyway? Yuck). Bye bye. Well my favorite milk pitcher… Continue reading New Milk Carafe
Growing up following the PKU diet, you get a lot of questions. You drink a special formula, say ‘no’ to many foods, and often eat different food – and people notice. It can be hard to know how to explain PKU, because it is so rare and it’s unlike any food issue most people have… Continue reading Explaining the PKU Diet
I was interviewed recently about life with PKU for this genetic testing website. They published it for National PKU Awareness day. Me You and PKU – Recombine
You may be thinking that was a typo. But no, I meant, “protein cooking,” not, “Low-protein cooking.” Because, for many of us, we are not living our PKU life in isolation, we are a part of a family! We often end up cooking protein and low-protein food side by side. Growing up I am sure… Continue reading Protein Cooking
TRU: The Real You — Taking Control: What I’ve Learned From Having PKU
One of my best friends has this awesome blog about TRU Beauty to help women and girls come to know their true value and potential. This week she featured an article I wrote about what I’ve learned from having PKU. Check it out and ‘Like’ their facebook page!