Going off diet, getting back on, and why she’s staying there For my first guest post, I am happy to share the inspiring story of Tiffany Partridge. Thank you so much Tiffany for being willing to share! Here is her story in her own words: As far back as I can remember I knew I… Continue reading Tiffany’s Story
I love how the internet and social media allows so many of us connect and share our stories and get to know each other. It has made me aware that everyone’s experience with PKU is so different. As someone who has been on diet my whole life, I realize my story may be different than many others, but it’s my story and it’s… Continue reading My PKU Story
Kevin Alexander just posted on facebook about travelling with PKU and I realized that I have some good stories that need to be shared! Getting through airport security with formula can be interesting. I bring my formula for the day in a little cooler. Now, as we all know, we are not allowed to bring… Continue reading Travelling Stories
Committing to the diet is difficult, but totally worth it. Sometimes I think of the words of the song Barbra Streisand sings in Yentyl, There Are Moments: There are moments you remember all your life. There are moments you wait for and dream of all your life. This is one of those moments. This past… Continue reading This Is One of Those Moments
PKU: An abnormal thing in an otherwise normal picture A couple of summers ago my best friend Kylie needed to do a portrait project for her photography class. She asked me to be her model. I was of course happy to do it! She wanted the theme to have something to do with my PKU.… Continue reading Formula Photo Shoot
My mom tells about her experience having a child with PKU “Are you sitting down?” was his first question. My mom was 24 years old. She was sitting on the couch nursing her brand new baby girl, when she got a phone call from a Doctor Ronald Scott from the University of Washington. “Yes, I… Continue reading Are you sitting down?