I missed PKU Awareness Day on December 3, but today I want to share a different side of the PKU story. This week I made rice crispy treats because, well, my daughter saw the holiday rice crispie box in the store and the pictures of rice crispy treats looked good. I’m also not a very… Continue reading PKU – People Are Actually Really Great About It
Diet compliance: How can we better empower people with PKU to follow the diet and reap the benefits? PKUers Supporting Each Other I think the true mark of accepting a challenge we’ve been given in life is turning around and trying to help others going through the same thing. Put differently, I think one of… Continue reading My Passion
My mom tells about her experience having a child with PKU “Are you sitting down?” was his first question. My mom was 24 years old. She was sitting on the couch nursing her brand new baby girl, when she got a phone call from a Doctor Ronald Scott from the University of Washington. “Yes, I… Continue reading Are you sitting down?