Inspiration/motivation · Living with PKU · Moms · Promotion/Awareness · Science

To Indianapolis!

How is everyone’s summer going? Down here in Arizona we are surviving the three digit temperatures by being  creative with indoor play (did you know couch cushions can entertain two little girls for hours?) and by going out of town a lot. ūüôā So far we’ve had a family reunion in southern Utah, a California… Continue reading To Indianapolis!

Attitude · Inspiration/motivation · Living with PKU · Moms

It is OK to be Different!

Dealing with the PKU diet as a family note: this post was originally written¬†for and posted on the Metabolic Disease Foundation’s blog about PKU One of the biggest concerns I have heard when talking to parents of PKU children, is how their child will deal with being different. Today I will share my perspective, writing… Continue reading It is OK to be Different!

Diet Compliance · Inspiration/motivation · Living with PKU · Moms

Interview with Alissa Doerner: A Classic PKU Story

Alissa is a special education teacher, a 5k runner, and a world traveler. She also has classic PKU. Here is her story. What was it like growing up with Classic PKU? Growing up with Classic PKU was just like anyone else growing up, I just ate differently. Classic PKU, my special diet, my formula, and… Continue reading Interview with Alissa Doerner: A Classic PKU Story

Attitude · Blood Levels · Diet Compliance · Inspiration/motivation · Living with PKU · Moms · Promotion/Awareness

My PKU Story

I love how the internet and social media allows ¬†so many of us connect and share our¬†stories¬†and get to know each other. It has made me aware that everyone’s experience with¬†PKU¬†is so different. As someone who has been on diet my whole life, I realize my¬†story¬†may be different than many others, but it’s my¬†story¬†and it’s… Continue reading My PKU Story