It has been a while since I’ve posted anything on my PKU blog! I have just been busy with: These three cuties Homeschooling And carrying our fourth child. And then as we all know, this pandemic has required readjusting and alignment of our priorities. Despite the challenges, I feel blessed that my husband has continued… Continue reading Third Trimester of 4th Pregnancy
Last week there was a day when I wasn’t sure if I had enough ingredients to make dinner, but I really didn’t want to go to the store with two little munchkins. So I got creative and made homemade spaghetti sauce for the first time. I had pasta, meatballs, canned tomatoes and frozen veggies at… Continue reading Homemade Spaghetti Sauce
“The diet is difficult to follow.” “I know I need to drink my formula, but it’s hard.” “I’m so worried my child will feel that he’s different.” “I don’t like my doctor.” “I have really slacked on my diet lately and I feel super guilty.” “PKU foods are so expensive!” “I hate PKU. I wish… Continue reading Emotional Work and PKU
I would like to formally announce that I am pregnant with baby number 3! I am due June 25. Right now I’m a little over 27 weeks along. Despite our gut instincts to the contrary, we are having yet another girl! I am feeling pretty well. First trimester was not fun. Nausea, winter, and my… Continue reading A Mother Again
I missed PKU Awareness Day on December 3, but today I want to share a different side of the PKU story. This week I made rice crispy treats because, well, my daughter saw the holiday rice crispie box in the store and the pictures of rice crispy treats looked good. I’m also not a very… Continue reading PKU – People Are Actually Really Great About It
It’s not what’s on your table, but who is around it that counts. Yesterday I attempted to make home-made boiled dumplings for the first time. This is something my family did and still does every year at New Year’s Eve, and it has become my all-time favorite holiday tradition. As a young adult, my Dad… Continue reading Chinese Dumplings – a Family Experience
Last week I posted about my grocery store tour with Biomarin clinical coordinator, Tiffany. Today I’m sharing the snack foods I saw while there. All of these were found in my local Kroger store. Basic crackers. That’s 0.3 g of protein. Cookies Apple butter for biscuits, pancakes or toast. We use this a lot in… Continue reading 8 Low-Protein Snacks at the Grocery Store
I recently had the chance to receive a grocery store tour of all the low-protein options in a regular store. Tiffany, a Biomarin clinical coordinator, reached out to me an offered to give the tour. I brought my two little girls to our local Kroger store, and we walked the entire place, looking at all… Continue reading Low-Protein Grocery Store Tour
Last week my sister Marianne and her cute little family came to visit for my daughter Elena’s fourth birthday. It was so nice to see them! I have mostly lived away from family during my marriage, and now my sister is a 3 hour drive away. Yay! Many more get-togethers to come. One night for… Continue reading Summer Kababs
In my last post I shared that I have begun Kuvan treatment. Because some of my audience are people that don’t have PKU and are not familiar with Kuvan, I thought I’d take a minute to explain what Kuvan is and how it works. First, a refresher on PKU I general: in PKU patients, the… Continue reading Kuvan – the what and how
Me, You and PKU 